ThoughtGallery.org > Warwick Anderson —“A Pervasive Dread”: Disease Emergence, Genetics, and Indigeneity in Northern Australia

Warwick Anderson —“A Pervasive Dread”: Disease Emergence, Genetics, and Indigeneity in Northern Australia

After World War II, rumors began to circulate of a mysterious illness among the Anindilyakwa people of Groote Eylandt (in the Gulf of Carpentaria), a neurological disorder causing an unsteady, high-stepping gait—hence called ‘bird disease’ locally. Described formally only in the 1980s, the syndrome usually developed in middle age and led inevitably to general neurological deterioration and death. Although it seemed to run in families, initially scientists attributed the disease to manganese toxicity, from the mines on Groote Eylandt. But in 1996, research showed that it was a form of Machado-Joseph disease (MJD), a genetic disorder present also in the Azores, southern Brazil, and parts of East Asia. Thus genetic explanation substituted for environmental and social reasoning. The Anindilyakwa went from being Indigenous isolates, vulnerable to development, to genetic cosmopolitans, suffering the biological consequences of empire. MJD on Groote Eylandt raises issues of disease definition and framing, Indigenous genomics, the origin of the mutation, the contrast between Indigenous and scientific explanations and narratives, and practices of care in remote Indigenous communities. It compels us to connect Indigenous histories with histories of “race-mixing,” genetics, and medicalization.











When: Fri., Apr. 19, 2019 at 6:30 pm - 8:30 pm
Where: Columbia University
116th St. & Broadway
212-854-1754
Price: Free
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After World War II, rumors began to circulate of a mysterious illness among the Anindilyakwa people of Groote Eylandt (in the Gulf of Carpentaria), a neurological disorder causing an unsteady, high-stepping gait—hence called ‘bird disease’ locally. Described formally only in the 1980s, the syndrome usually developed in middle age and led inevitably to general neurological deterioration and death. Although it seemed to run in families, initially scientists attributed the disease to manganese toxicity, from the mines on Groote Eylandt. But in 1996, research showed that it was a form of Machado-Joseph disease (MJD), a genetic disorder present also in the Azores, southern Brazil, and parts of East Asia. Thus genetic explanation substituted for environmental and social reasoning. The Anindilyakwa went from being Indigenous isolates, vulnerable to development, to genetic cosmopolitans, suffering the biological consequences of empire. MJD on Groote Eylandt raises issues of disease definition and framing, Indigenous genomics, the origin of the mutation, the contrast between Indigenous and scientific explanations and narratives, and practices of care in remote Indigenous communities. It compels us to connect Indigenous histories with histories of “race-mixing,” genetics, and medicalization.

Buy tickets/get more info now